NRAS are pleased to support research being carried out by Dudley NHS and the University of Leicester. Full details below. To complete the survey click
https://www.surveymonkey.com/s/BJNCRPX
Should there be information and education available for children whose parents or grandparents have chronic rheumatic conditions?Hello,
My name is Elizabeth Hale and I would like to give you some information about a research project that I am carrying out and I would like to invite you to take part. The research team are myself and Professor George Kitas from The Dudley Group of Hospitals NHS Trust and Professor Panos Vostanis and Dr Michelle O’Reilly from the University of Leicester.
The research is being funded by Arthritis Research UK and The Dudley Group NHS Foundation Trust Charitable Fund.
What is the research about?
People with long-term rheumatic conditions, like rheumatoid arthritis, are often given leaflets to read about their condition. These leaflets try to answer some of the questions they, and their family, might ask. There are also leaflets for the partners or carers of patients. There are also reputable websites that provide this information.
At the moment there is no information available specifically for the children or grandchildren of people who have long-term rheumatic conditions. We are carrying out a research project to find out if people think it would be a good idea to provide this information for children, written in a way that they would understand. We would also like to know the best way to provide this information, and when.
The National Rheumatoid Arthritis Society (NRAS) have very kindly agreed to help us with our project by making our questionnaire available to their members. We would like to ask you for a few minutes of your time (about 5 to 10 minutes) to complete this short questionnaire which asks you for your views.
Will the information I give be kept confidential?
The questionnaire does not ask you for your name, so you can reply anonymously. Some of the questions ask you to write an answer in your own words. When we write a report on this research project we may quote some of these statements. As we do not ask you for your name we will do everything we can to protect your confidentiality. If you do mention someone or a place by name, we will change this or delete it so that it will be very difficult for anyone to identify you.
If you would like to request any further information or talk to the researcher by telephone, please call:
Ms Elizabeth Hale
Department of Rheumatology,
Clinical Research Unit,
North Wing,
The Dudley group of Hospitals NHS Foundation Trust,
Russells Hall Hospital,
Dudley DY1 2HQ
Tel: 01384 456111 extension 3722 (an answer machine is available)
OR
Mr Ben Watkins: 01384 456111 extension 1890.
Please do not contact NRAS as they will not be able to answer any questions about this research project.
